Chronic illness: Living vs Existing.

I found this:


A fine line, ladies and gentleman, is what stands between living with chronic illness and being alive with chronic illness. I’ve straddled it a few times, but I’ve figured out some of what on the other side and here’s what I know:

1. You’re not living with a chronic illness if you’re hunting for the why full time.


Is it because of a parasite? A bacteria? A cancer? Is it because you wore that blue dress last Tuesday? Is it because you stuck gum in someone else’s hair that one time in second grade? There are an infinite list of possibilities as to why you could be sick. But after a while, and at least for a while, you’ve got to take a break from the endless hunt for answers and ask yourself, “How am I going to handle living with my disease today?”

There has to be breaks, balance, within the search for answers. You can’t just live going from doctor to doctor. You have to even out the space in between with friends and work and family.

Because you can’t hunt, you can’t search, you can’t question, and you can’t get an answer for any of the whys in life until you’ve mastered feeding yourself, moving yourself, balancing your work, relationships and symptoms at the same time. I mean, you can throw all of those things out the window and just hunt while you lay in bed dying.

But we don’t call that living.

2. You are not living with chronic illness if you’re not working.


Don’t panic. I’m not living under a rock, I know lots of people with chronic illness can’t work conventional jobs. So I don’t mean working in the 9-to-5 sense. I mean working in the “I have a goal” sense. Like my goal is to get enough documentation to get disability. Or my goal is to raise my kids as best I can despite my symptoms. Or my goal is to focus on my physical therapy so I can become more mobile each day. Or my goal is to find ways to work from home. Working is purpose. Do you have it?

3. You’re not living with chronic illness if you’re hating yourself.


Sure, it’s super easy to slap a “defect” sticker on your chest and go cry in the corner. Hating yourself is about as natural as all the other symptoms of chronic illness — weight gain, constant pain, fatigue — but this is (maybe) one of the only symptoms you can wake up and shake off every day. Go to therapy. Learn to cope a little more every day. Making peace with your disease is something you have to do because…

4. You’re not living with chronic illness if you’re fighting it.


Can we clarify something here for the general population? Fibromyalgia is not part of the WWF. Chronic illness is not cancer. You don’t “fight” it. You don’t “beat” it. You don’t make a voodoo doll out of it and start stabbing it with acupuncture needles. In the same way we don’t use the word “cure” to mean “treat” we can’t use the word “fight” to mean “deal with.”

Chronic Illness is:

  • Coped with
  • Managed
  • Organized
  • Contained
  • Controlled
  • Lived with
  • Handled
  • Confronted

Managing chronic illness means developing strategies to assist you in moving forward with your life’s greater focus with as minimal suffering as possible. Don’t head-butt your disease, outsmart it.
5. You’re not living with chronic illness if you are not moving.

We all linger in stagnation for a while. We get stuck in the mud. Blindsided by an unexpected diagnosis. We let the moment we need to absorb, absorb us. Life with chronic illness is just like any other — a life full of obstacles. With pain, illness, exhaustion — it’s easy to sit down for a while and rest your body. It’s easy to lay down and not get back up. But if you’re not moving, you’re not living. So even when the obstacles become too great, the treatment stops working, the doctors stop telling you the good news, even when you lose support, you lose sight of what you’re moving towards — you keep moving.


Last week before school – Or COUNTDOWN BEGINS!!!! (Says the catastrophizer)

This is a weird year here in BC to be getting “Ready for school”.

For me it means buying text books, and organizing notebooks, but for most of our province, it means facing a looming deadline of shit. “Where to put the kids?” “How to get to work?” “How to pay the bills if you are a teacher or an employee of a school?” and most importantly:

“How are we supposed to look our teachers in the eyes and not beg them for their forgiveness that we are so terrified of change that we cannot support them in the way that we should? 12 years teachers have had to endure a government that refuses to place education as THE #1 priority. 

As most British Columbian’s know, our Public school teachers are STILL on strike (not BACK on strike as some of our media outlets like to report. “Those teachers just LOVE that strike pay, they’re lazy and just want to sand there and collect money for doing nothing”

I am in University, studying for a education position and I wish to work in BC when I have graduated.  I find it troubling that our government will not concede to 2 Supreme Court Rulings that have sided with teachers that the right to control class size & composition, is a RIGHT as a Canadian citizen.

This is OUR school system. This is what is educating OUR peers, OUR citizens! and maybe it is just the bubble I have been living in lately, but no one seems to care. Our Ministers break CONTRATUAL-MEDIA-BLACKOUTS to brainwash desperate and scared parents into believing they will receive $40 a day of OUR money, so that they can keep bargaining in bad faith. Nevermind that this money will not be doled out until after an agreement has been reached. 

Now only someone who doesn’t have children would like this is even remotely logical. Good thing Christy Clark doesn’t want families or parents as a voter base. We’re too poor to be of any use to her. So who cares that we just won’t be having school this year! Put out a media report touting our huge budget surplus! BC’ers will never put 2 and 2 together to say

“Hey yo’ Gov! What up? why you not give that surplus to the teachers? Then you don’t need to worry so much about how to spend it and you know we could have .. like.. schools and stuff…… No? .. That’s crazy talk?… You’re right.. how silly of me… how else would you be able to put your kids in a better private school if there wasn’t shitty/poor/overrun schools to compare yours against.”

- Signed (sadly not enough of) BC’ers.

Sign of the Times

Originally posted on The Sailor's Woman:

This my last week of freedom.

Although school isn’t scheduled to start until September 2, we’re back on the picket lines beginning Monday. I’ve drawn the early shift. It’ll be tough answering to the alarm clock, but I don’t mind getting my shifts done early.

What really concerns me is the state of public education in this province.

The government isn’t budging in their negotiations. Well, that’s not actually true. They’re moving backwards, taking things off the table at each meeting. The wage package they’re currently offering is less than it was in May and their signing bonus expired in June.

At this rate, we’ll be paying them if we ever get back to work.

But wait–it’s not all doom and gloom. There is public money available!

The government proposes to pay parents of children under thirteen $40 per day for the duration of the strike/lock out. This money is…

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Even though MOST canadians think ourselves better than our southern couterparts, our voter turn out is under 50%.

For a country that thinks itself above the racism and segregation issues, we bindly deny centuries of genocide of our own first nations.
Our police forces kill, harm, harass, rape, and violate our own citizens, and our government lies and steals and cheats (we’re just more polite about it)

Lets ALL get out there and vote down ALL forms of racist/sexist government.

Enough of this shit.

Originally posted on The End:

A man at a protest holds a sign expressing his solidarity – and commonality – with Mike Brown.


Mike Brown is dead.

Mike Brown was shot to death.

Mike Brown was 18 years old. Black. Unarmed.

Mike Brown was gunned down in the middle of the street, in the middle of the day.

By a cop.

In Ferguson, Missouri.

In the United States of America.

Ferguson, Missouri is a suburb of St Louis. Its population is 70% black.

Its mayor is white. School board is white. City council is white (except for one black member). And the Ferguson Police Department is 94% white, with only 3 black police officers.

Mike Brown was shot six times by Ferguson Police Officer Darren Wilson. Four times in the arm, twice in the head.

His crime was jaywalking.

Later it was suggested by the Ferguson Police Dept that he may…

View original 1,148 more words